The Fund strongly supports those working toward cures for major diseases, but we feel those living with, and dying from, SCA also deserve hope for a cure. As I’ve discussed before, I’ve […]
For those with rare diseases, awareness is hope. We have national awareness and recognition days basically every day, it seems. Some aim at serious issues and causes, while others celebrate the fun side […]
I have some advice for you: if you’re going to get sick, don’t feel the need to be innovative about it. Nothing good comes of winning at Stump the Doctor. No, come […]
Spinocerebellar ataxia sucks the joy out of another day… As I have mentioned before, I have a degenerative brain condition. It’s called spinocerebellar ataxia, and is essentially an atrophying of the portion of […]
When Spinocerebellar Atax. Ia. See what I did there? When Spinocerebellar Ataxia attacks? Atax. Ia? Get it? Never mind. Anyway, as I’ve noted before I have SCA. And this morning there was […]
Had a rough start to my day. Has anyone else had a similar experience on the RTD? The event described below occurred on November 15, and I sent a draft of this […]
No matter how hard the world tries to make you look down, the view is better with your head up. – I don’t do inspirational, but this was a little too relevant […]
Yesterday was … unsettling. Any time you’re meeting with your physician and the words “brain tumor” come out of her mouth, it’s going to make you sit up a little straighter, even […]
