Editor’s Note: S&R recently published a photoessay from Sarah Allegra, who suffers from Chronic Fatigue Syndrome. Allegra’s struggle with this condition is ongoing, obviously, and she recently contacted us about her efforts on behalf of the CFIDS Association of America. We’re pleased to provide her the space to share this initiative with our readers and we encourage you to help out however you can.
by Sarah Allegra
Chronic Fatigue Syndrome is an illness which is still an enigma. This sly disease is characterized by a persistent, heavy fatigue which rest does not lift, muscle and joint pain, insomnia, migraines along with a scattering of other hanger-on physical symptoms. Over the years, various theories have come and gone about what it is, what causes it, and how to cure it. I have heard it is an auto-immune disease, a problem with the central nervous system, various vitamin and mineral deficiencies, a problem with every hormone the human body has ever produced in turn, and the insidious, tenacious whisper that it’s all in our head.
I want to see this mystery solved, not only for the selfish reason of wanting to have some hope of not feeling like a rotting, living corpse every day, but so that the thousands and thousands of others who are far, far sicker than I can imagine being can someday be well. This is a big wish, but it’s one that can come true. While the US still does a lot of feet shuffling and looking the other way when CFS is brought up, other countries are doing more research.
And even within the US, the stigma is starting to fade; slowly, but inexorably. The group CFIDS (CFIDS.org) is one of the few groups in America not only taking Chronic Fatigue seriously, but actually trying to solve the problem.
I want to be a part of the solution too, so I’m holding a fundraiser. From now until August 31st, 50 percent of all profits from sales of my limited edition prints, and enrollment in my on-line, self-discovery-through-photography course, INTROSPECTIVE, will be donated to the CFIDS. And of course you can make donations directly to them.
Chronic Fatigue Syndrome may look like a Gordian Knot right now, but if we band together, we will cut it with the strength of our will. Please join me in this.